Pediatric Research Network (PResNet) Database and Registry
The purpose of this registry is to collect names and some general information of people who may be interested in participating in a future pediatric research study.
This proposal is to expand an existing PResNet database which is currently used for within study data collection, into (1) a recruitment database that includes health or demographic information that will be used to identify and recruit potential research subjects in the future and (2) a research database (i.e. data that was not previously collected for clinical care but for research purposes only) that will be used for future research studies. This will allow the PResNet database to serve as a registry for individuals who are interested in being contacted for future pediatric research studies and as a source of data for de-identified analyses on pediatric research participation in a clinical or community setting.
- IRB Number: 1312927590
- Research Study Identifier: TX6820
- Principal Investigator: Stephen Downs, MD