Attitudes, beliefs, and experiences impacting autism-related medical innovation uptake: The Optimizing Innovations Study
C
Carolyn McCormick
Primary Investigator
Overview
The goal of this study is to learn more about experiences with healthcare and attitudes toward telehealth.
Description
Participation involves one 90-minute interview that will take place over the phone at a time that is convenient for you. During the interview, you will be asked about topics like your experience with accessing healthcare for yourself and your family as well as your thoughts about remote healthcare delivery. This study is designed to understand the attitudes, beliefs, experiences, and decision making processes that may influence the utilization of a telehealth assessment for autism risk.
Eligibility
You may be eligible for this study if you meet the following criteria:
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Conditions:
autism,autistic,child,children,women,mother,mothers,healthcare,telehealth,Angelman syndrome,Down syndrome,Fragile X syndrome,Williams syndrome,Prader-Willi syndrome
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Age: Between 18 Years - 100 Years
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Gender: Female
Eligibility Criteria:
You may be eligible if you are a:
Mother living in Indiana
Mother of a child who has been diagnosed with any of the following genetic syndromes: Angelman syndrome, Down syndrome, Fragile X syndrome, Williams syndrome, or Prader-Willi syndrome
Mother who identifies as autistic
Autistic woman who is trying to conceive or thinking about trying to conceive
Updated on
19 Apr 2024.
Study ID: IRB-2019-582