Adult life for individuals with Down syndrome

R
Rachel Swinford

Primary Investigator

Overview

The purpose of this study is to explore the current experiences and quality of life for adults with Down syndrome as perceived by themselves, their family members, and direct support professionals.

Description

The purpose of this study is to explore the current experiences and quality of life for adults with Down syndrome as perceived by themselves, their family members, and direct support professionals.

Eligibility

You may be eligible for this study if you meet the following criteria:

  • Conditions:
    Down syndrome
  • Age: Between 18 Years - 100 Years
  • Gender: All

Inclusion Criteria
The target population for this study will be adults with Down syndrome, their family members, and direct support professionals who work with adults with Down syndrome.
identified with Down syndrome
willing and able to participate in a focus group and in-home interview
family members of an adult with Down syndrome
caregivers who work regularly with adults with Down syndrome
Exclusion Criteria
Individuals who are nonverbal
Additional Information:
Participants will not be paid for their participation.

Updated on 22 Mar 2023. Study ID: 1802262588

Interested in the study?

Select a study center that’s convenient for you, and get in touch with the study team.

Contact a study center