X-linked Hypophosphatemia Disease Monitoring Program - (XLH-DMP)
Are you eligible to participate in this study?
You may be eligible for this study if you meet the following criteria:
Conditions: X-linked hypophosphatemia
Age: Between 0 - 100 Years
Gender: Male or Female
Clinical diagnosis of XLH based on family history, OR confirmed PHEX mutation, OR biochemical profile consistent with XLH
Serious medical or psychiatric comorbidity
Less than five years of life expectancy
Concurrent enrollment in an Ultragenyx-sponsored clinical trial
Contact the research team to learn more about this study.
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