DEcisions about Cancer screening in Alzheimer's Disease (DECAD)

N
Nicole Fowler

Primary Investigator

DEcisions about Cancer screening in Alzheimer's Disease (DECAD)

Overview

The purpose of this study is to gain an understanding about the use of educational pamphlets by caregivers of women with dementia. This study will randomly assign caregivers to receive one of two different educational pamphlets and is designed to gather information on how caregivers make health care decisions for someone with dementia.

Description

The DECAD study is designed to support caregivers of women with Alzheimer's disease who are 75 years of age or older. We are hoping to learn how to better assist these caregivers in making medical decisions for their loved one.
 
The study involves:
Three caregiver interviews (in person or via phone). We will ask questions about caregiving and making medical decisions. To compensate your time you will receive a $25 Kroger gift card after each interview.

Eligibility

You may be eligible for this study if you meet the following criteria:

  • Conditions:
    Alzheimer's disease,Breast Cancer,Mammography,Dementia,Caregiving,Medical Decision Making,Caregiver Support,Family Member Support,care giver,family member
  • Age: Between 18 Years - 100 Years
  • Gender: All

Caregiver Inclusion Criteria:
1. Self identify as a caregiver for a person with Alzheimer's disease or related dementias
2. be 18 years of age or older,
3. must have a telephone
4. be English speaking

Patient Inclusion Criteria:

1. Women
2. 75 or older 
3. diagnosis of Alzheimer's disease or related dementias
4. eligible for breast cancer screening (At least one mammogram in the past five years)
5. Primary care visit scheduled in the next 12 months
 
Caregiver Exclusion Criteria:
1. Made a decision that the patient will stop getting mammograms
2. Caregiver is a non-family member who is not a legal Healthcare Power of Attorney
3. Has a diagnosis of AD or has a mental illness such as bipolar or schizophrenia
4. Less than a 7th grade education
 
Patient Exclusion Criteria:
1.Permanent resident of a nursing facility
2.Had a mammogram in the past 9 months
3.Primary care visit scheduled is the first visit with the PCP
4.Made a decision to stop getting mammograms
5.History of breast cancer or other cancer within the past 5 years
6.Has mild cognitive impairment or mental illness such as bipolar or schizophrenia

Updated on 31 Jan 2023. Study ID: 1501278953

Interested in the study?

Select a study center that’s convenient for you, and get in touch with the study team.

Contact a study center