Cystic Fibrosis Patient Registry

Study Overview

The goal of the Patient Registry is to collect data on individuals with cystic fibrosis (CF)or individuals with CF related disorders (e.g., CFTR-related metabolic syndrome, CFTR-related disorders) to better understand the illness and ultimately improve th

Study Description

The goal of the Patient Registry is to collect data on individuals with cystic fibrosis (CF)or individuals with CF related disorders (e.g., CFTR-related metabolic syndrome, CFTR-related disorders) to better understand the illness and ultimately improve th


  • IRB Number: 1011003555
  • Research Study Identifier: TX1988
  • Principal Investigator: Michelle Howenstine

Recruitment Status

Closed
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