Cystic Fibrosis Patient Registry

M
Michelle Howenstine

Primary Investigator

Overview

The goal of the Patient Registry is to collect data on individuals with cystic fibrosis (CF)or individuals with CF related disorders (e.g., CFTR-related metabolic syndrome, CFTR-related disorders) to better understand the illness and ultimately improve th

Description

The goal of the Patient Registry is to collect data on individuals with cystic fibrosis (CF)or individuals with CF related disorders (e.g., CFTR-related metabolic syndrome, CFTR-related disorders) to better understand the illness and ultimately improve th

Eligibility

You may be eligible for this study if you meet the following criteria:

  • Conditions:
    Cystic Fibrosis
  • Age: - 100 Years
  • Gender: All

Inclusion Criteria
All cystic fibrosis patients followed at Riley Hospital and Deaconess Hospital CF Outreach Clinic.
Additional Information:

Updated on 18 Jul 2023. Study ID: 1011003555

Interested in the study?

Select a study center that’s convenient for you, and get in touch with the study team.

Contact a study center