Improving the Quality of Care for Adults With Inflammatory Bowel Disease (IBD:QORUS)

To demonstrate the impact of an Adult Inflammatory Bowel Disease (IBD) Learning Health Systemh the study collaborators will design, build, implement, and evaluate in up to 90 IBDhe the following four key components of the IBD Learning Health System: 1) a Health Information Technology (HIT) environment that can "feed-forward" PROs and clinical data to be used at the point of care and integrated into a registry (IBD Plexus); 2) decision-support dashboards for use by patients and clinicians in real time to coproduce; 3) meaningful reports for patients and clinicians; and 4) multi-stakeholderborative networks for improvement and research.

Prior work from Sweden and the US show that successful uptake of the model can offerbenefits. Patients will be able to use web-based tools to monitor their health andge their care, securely share data with clinicians in a timely manner, visualize outcomeshat matter to them, and compare their results to other people. Clinicians will have newhat can improve their ability to track patient outcomes and costs over time; use PRO data to support pre-visit planning, shared decision-making at the point of care, andvisit monitoring; and receive comparative performance reports to support qualityvement, public reporting, and professional development. Researchers will benefit by having PROs and cost data added to data registries to support clinical, translational, andve effectiveness research.