Foundations for Improving Oncofertility Experience Among Children with Cancer and their Families
A
Amanda J. Saraf, DO
Primary Investigator
Overview
Engage with children via formal interview who received a diagnosis of cancer, and who have had a formal Oncofertility consult to understand the experience and perceptions related to both family-centered and provider-focused fertility conversations, as well as improvements Oncofertility team could make that affects the experience for patients and their families.
Description
Aim 1: Engage with children who received a diagnosis of cancer who have had a formal Oncofertility consult to understand the experience and perceptions related to both family-centered and provider-focused fertility conversations.
Aim 2: Evaluate interviews of patient perceptions of new cancer diagnosis consults for patient-focused improvements of the Oncofertility team experience for patients and their families.
Aim 2: Evaluate interviews of patient perceptions of new cancer diagnosis consults for patient-focused improvements of the Oncofertility team experience for patients and their families.
Eligibility
You may be eligible for this study if you meet the following criteria:
-
Conditions:
cancer
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Age: - 17 Years
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Gender: All
Inclusion Criteria:
- · Ability of parent/guardian to provide verbal informed consent for patientsunder the age of 18· New diagnosis of cancer with completion of Oncofertility Consultwithin 1 month of new diagnosis in subjects planning on receiving systemic chemotherapy, surgery, and/or radiation· Patient documented to be present during completion of initial consult
Exclusion Criteria:
- · No formal fertility consult for new cancer diagnosis· Repeat consultation for relapsed disease· Severe, acute illness impacting the patient’s decision-making capacity thatprecludes voluntary consent/assent
Updated on
28 Apr 2024.
Study ID: 17969; PHO-IIR-ONCOFERTILITY
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